Kaegan entitled this blog, "RPM is my lifeline," I added the 2. Because RPM is my lifeline too. When I think back on the years before Kaegan could communicate, I'm brought to an acute awareness of how things could be right now.
If I had continued to try to "make" something out of his meaningless (I know now) language, we would be having a one-sided conversation about Thomas the Tank right now, with him telling me to "be quiet," and "go away."
If I had continued to try to make connection with him through jumping alongside him or running back and forth, we would still be miles apart and lonely.
If I had continued to take him literally when he yelled NO about every new activity, we'd still be sitting in a still, silent room.
If I had continued to answer his persistent and repetitive questions, I would need a therapist and he would still be frustrated that I was unknowingly making his questions more persistent, more pervasive.
If I had continued to believe the lie of autism when he refused new tasty foods, he would still be eating only chicken nuggets and waffles.
If I had never discovered RPM, we would be where we were. Stuck.
RPM is my lifeline too.
Exactly. My experience with my son is so very similar, right down to the one-sided Thomas the Tank conversations, the "no" to almost everything and the repetitive questions. When my son learned to communicate at 14, I finally had a lifeline, as did he. The world is right again.
ReplyDeleteIt's amazing how all of our stories are so similar. We moms of non speaking or not reliable speakers share a special bond. I created a non profit called Point To Freedom, sharing our incredible story of learning about pointing to letters to communicate and am beyond hopeful that we can reach as many families like ours. You provide me with inspiration. So happy for you and your family and may the tribe continue to grow:)
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